giving in but not giving up

18 January, 2008

a soothing picture from last summer

Just the last coupla days, I have given in. But I have not given up.

I have had chronic fatigue for ten years now. Someone asked me recently how I deal with a chronic illness. I replied that I have an optimistic outlook and I believe things will get better for me and one day I will be if not cured, at least fitter than I am now and the illness will be more manageable.

Over the Christmas break, when we went from the east coast of Australia to the west, where we have family, I have been much better than I expected I would be. I had thought that the long journey would tire me and that a higher level of interaction with people such as happens at Christmas and New Year would exhaust me. But not so, things went very well. While over there, I started my walking again, even though the temperatures hit nearly 45 deg C for some days running – but I walked in the morning and avoided the later heat.

These were not long walks by most peoples’ standards – just, for me, a relatively brisk walk for 15 minutes. I worked hard not to walk too much each day, but to do it every day and i felt the effect on my legs immediately. Muscle wastage is a real concern so it was encouraging to feel my legs responding positively to the exercise, and to delight that I was become more sprightly (although that again is a relative term).

It is often difficult to work out what makes my system respond badly, and for me to have a bit of a setback. It may be that yesterday, now we are back on the east coast, was a very humid day and I had been a little tired all day. I had not done my walk in the morning (I am never good in the morning) as I felt it might push me over that fine line between the benefit of graduated exercise and the malaise of over-exertion. But the afternoon seemed a little cooler and I was keen to do my walk, to keep it going. So off I went, but laboured a little on the last hill back home.

And I paid for it today. Felt quite bad after a disturbed and troubled night. So I did not go out for my walk although it was cool (but pouring with rain). And I have done little today. I have needed to lie down three or four times. I did a little house work late afternoon, about 20 minutes vacuuming. That made me realise I should do no more.

So I gave in to the fatigue. But I have not given up.

3 Responses to “giving in but not giving up”

  1. finn Says:

    i know what you mean about trying to figure out why your body does the things it does. i dont understand why my hamstring will tear when it seems i havent done anything untoward and that is so frustrating, to spend so much time trying to understand and predict your body and then it goes and does something off-the-scales when you were doing nothing excessive, nothing very different at all.

    so we just scratch our heads and soldier on. im glad you enjoyed your time in perth though.

  2. alvason Says:

    ya Finn it is a puzzle so it is.


  3. [...] day I will be if not cured, at least fitter than I am now and the illness will be more manageable. source Photo by Alvason I still love fiddling with optical stiff – cameras especially, I have some old [...]


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